Tag Archives: transplant

Nothing new, nothing has changed…

I was so hopeful that with the advent of a new year, things would begin to change for my daughter.  That hope was for naught, it appears.  Nothing has changed.  All we get is more of the same.  Nothing new … Continue reading

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Isn’t it amazing?

Isn’t it amazing that we have performed home dialysis for the last 3 days now and we have almost got Carly down to her dry weight.  A week in the hospital with daily dialysis in the Acute Unit was unable … Continue reading

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Low Potassium, Low Hemoglobin–Help! STAT!

Today we got a call about the labs we drew up on Tuesday and FedExed back to the clinic.  The nurse calling was very concerned because Carly’s potassium level is 2.2 which is CRITICALLY  low and she asked lots of … Continue reading

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Home Dialysis is old-hat!

Since I last posted, I have become very comfortable doing home dialysis with Carly.  My sticks are getting better and better and giving me fewer problems with the machine. We do still have weird alarms that we have to look … Continue reading

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24 hours without a bleed!

Today is Friday and my daughter is out of the hospital; and she has gone 24 hours without a bloody nose or any sign of a bleed.  She was so glad to sleep in her own bed last night.  We … Continue reading

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Transplant process–Part 2

So, we went off the Dallas to meet the transplant team at Baylor Hospital.  It was a long drive from Austin with a very sick young woman in the car.  We had to bring her oxygen concentrator with us because … Continue reading

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